Resources available through the network
"TREAT-NMD provides tools and infrastructure to help the neuromuscular field collaborate better internationally, addressing areas that often get missed in individual research projects. From patient registries to international consensus publications, the resources below are available to clinicians, researchers, industry and patients across the world."
Global patient registries
Registries containing key clinical and genetic information about individuals with NMDs across the world
Care and trial site registry
A database of clinical sites and medical centres caring for patients with NMDs and participating in clinical trials
Outcome measures
"Outcome measures" are the tests that investigators perform to decide whether a treatment being tested in a clinical trial is having any effect
TACT
The TREAT-NMD Advisory Committee for Therapeutics - an expert multidisciplinary body providing independent and objective guidance on advancing new therapies for NMDs
Biobanks
EuroBioBank: a network of biobanks distributing DNA, cell and tissue samples to scientists conducting research on NMDs
Training and education
Information on specialist training courses covering neuromuscular disorders
Social and ethical framework
TREAT-NMD is undertaking research to explore, identify and examine ethical and social issues in clinical research of neuromuscular disorders
