EVELAM 2013 - Meeting report

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  • J. Andoni Urtizberea
    J. Andoni Urtizberea
    Dr Jon Andoni Urtizberea is head of the internationally renowned Paris Summer School of Myology...

Formed in 2012 the Euro-Latin-American Summer School in Myology known as EVELAM convened for the sixth time in December 2013 in Cancun Quintana Roo, Mexico. The main aim of the school is to promote the diagnosis and study of neuromuscular disorders.

The course, which was held in Spanish, saw guest speakers coming from across Europe and the Americas. This year 164 participants from Brazil, Chile, Uruguay, Mexico, Paraguay, Peru, Colombia, Ecuador and Argentina attended the meeting. Among participants there were representatives from various disciplines including neurology, rehabilitation and paediatrics.

Topics inlcuded: diagnostic and therapeutic approach to the neuromuscular patient; muscular dystrophies in children and adults, congenital myopathies, metabolic myopathies, motor neuron diseases, immune mediated myopathies and neuropathies and myasthenia gravis. Additionally, there were clinicopathological case discussion workshops including cases presented by students.

Representatives from a number of parent associations: ADMO (AsociaciĆ³n Distrofia Muscular de Occidente), ALDIM (AsociaciĆ³n Leonesa para la Distrofia Muscular) and SMDM (Sociedad Mexicana de la Distrofia Muscular A.C.) were special invitees at the summer school. They gave presentations on their their projects and achievements whilst their contribution was acknowledged to be of great value. The Jain Foundation also presentated at the meeting discussing the possibly of establishing a Latin American network to help patients get genetic diagnosis.

EVELAM provides an opportunity for continuous training and an exchange of knowledge between Latin America and Europe with the aim of advancing care, diagnosis, and treatment of patients with neuromuscular disorders. It is hoped that these events will continue in the future to give as many specialists interested in neuromuscular disorders as possible to an opportunity to attend them. A great thank you goes to the local committee and also to the the international Scientific Committee who made this event possible.

12 Apr 2017