TREAT-NMD Alliance Members
Organizations
Algeria |
Association Shifa des Maladies NeuroMusculaires(ASMNM) |
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Asociación Civil Familias Atrofia Muscular Espinal (AME) Argentina |
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Australasian Neuromuscular Network |
Office of Population Health Genomics (Western Australia) |
Rare Voices Australia |
Save Our Sons |
Sydney Children's Hospital |
The Royal Children's Hospital |
Muscular Dystrophy Western Australia |
Muscular Dystrophy Queensland |
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Marathon - Verein von Eltern und Angehörigen gegen Muskelerkrankungen bei Kindern |
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Duchenne Parent Project Belgium |
Spierziekten Vlaanderen |
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Faculdade de medicina ABC |
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Bulgarian Neuromuscular Diseases Association - BNMDA |
Bulgarian NMD society |
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Canadian Neuromuscular Disease Registry (CNDR) |
Canadian Pediatric Neuromuscular Group |
Muscular Dystrophy Canada |
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Corporacion Familias Atrofia Muscular Espinal, FAME Chile |
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Children Hospital of Fudan University |
China DMD care and Support Association |
General Hospital of Chinese Armed Police Forces |
Meier Advocacy and Support Center for SMA |
Shenzhen Muscular Dystrophy Baby Care Center |
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Fundación Atrofia Muscular Espinal Colombia Sara y Sofia |
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Referral Center for Pediatric Neuromuscular disorders of Croatian Ministery of Health, Department of Pediatrics, Clinical Medical Centre Zagreb University of Zagreb Medical School and Croatian Society for Child Neurology |
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Cyprus Institute of Neurology and Genetics |
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End Duchenne |
Parent Project |
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Pediatric Neurology |
RehabiliteringsCenter for Muskelsvind RCfM |
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Muscle and Nerve Research Laboratory, Neurology Department, Ain Shams University |
Pediatric neurology unit, Children's Hospital |
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Finnish TREAT-NMD Patient Registry |
Neuromuscular Research Center, University of Tampere |
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AFM-Téléthon |
CYTOO |
gmp-orphan |
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Aktion Benni & co e.V. |
Deutsche Gesellschaft für Muskelkranke e.V. DGM |
Deutsche Muskelstiftung |
Children´s University Hospital, Dept. of Neuropediatrics, Neuromuscular Center |
MD-NET - German Network for hereditary neuromuscular diseases |
MGZ - Medizinisch Genetisches Zentrum |
ZNM - Zusammen Stark! |
Saarland University Hospital |
Universitaetsmedizin Goettingen |
Department of Neurology, University Hospital Cologne |
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Greek Association of myopathy awareness Duchenne / Becker |
Muscular Dystrophy Association Hellas |
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Misko Foundation |
National Institute of Environmental Health |
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FSMA á Íslandi - Families of SMA in Iceland |
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Dystrophy Annihilation Research Trust |
Indian Muscular Dystrophy Society |
Muscular Dystrophy Foundation India |
Molecular Diagnostics, Counseling, Care & Research Centre |
SAMSKARA |
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Duchenne Ireland |
Join Our Boys Duchenne Research Foundation |
Muscular Dystrophy Ireland |
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Little Steps |
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Fondazione Telethon Italy |
GFB Family Group of Beta-sarcoglycanopathy |
IRCCS S. Camillo Hospital,Venice |
Parent Project Onlus |
Unione Italiana Lotta alla Distrofia Muscolare (UILDM) |
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Japan Muscular Dystrophy Association, Corp. |
Neuromuscular Reasearch Department, National Center Of Neurology |
Patients Association for Distal Myopathies (PADM) |
Remudy, National Center of Neurology and Psychiatry, Japan |
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Kuwait Medical Genetic Center/KMGC |
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Lithuanian association for patients with genetic neuromuscular diseases "Sraunija" |
Justo Charity Fund |
Lebanon |
Lebanese Association for Neuromuscular Diseases |
Macedonia |
STOP SMA Skopje |
Malaysia |
We Care Journey |
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Institute of Mother and Child Health Care |
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Asociación Mexicana de Atrofia Muscular Espinal |
Fundacióon Mexicana de Enfermedades Genéticas y Médicina Genómica A.C. |
Sociedad Mexicana de la Distrofia Muscular A.C. |
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Muscular Dystrophy Organization Nepal |
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Duchenne Parent Project |
European NeuroMuscular Centre (ENMC) |
FSHD Europe |
FSHD Stichting |
LUMC |
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Muscular Dystrophy Association (New Zealand) |
NZ NMD Registry |
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Center for Inborn and Hereditary Muscular Disorders |
National Neuromuscular Centre, Norway (NMK) |
Neuromuscular Assosiation Norway (FFM) |
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Muscular dystrophy Registry of Pakistan |
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Fundacja SMA |
University Clinical Centre, Medical University of Gdansk, Poland |
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APN - Associação Portuguesa de Doentes Neuromusculare |
Hospital Dona Estefânia- Centro Hospitalar De Lisboa Central |
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Asociatia Parent Project Romania |
University of Bucharest/Department of Biochemistry and Molecular Biology |
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Russian Muscular Dystrophy Association |
Parent Project Duchenne Russia |
Saudi Arabia |
King Faisal Specialist Hospital and Research Center |
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Clinic for Neurology and Psychiatry for Children and Youth |
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Organization of Muscular Dystrophy in the Slovak republic |
Solvenia |
European Alliance of Neuromuscular Disorders Associations (EAMDA) |
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Association Conquistando Escalones |
Donostia University Hospital |
Duchenne Parent Project Spain |
FUNDAME - Fundacion Atrofia Muscular Espinal |
Fundación Andrés Marcio Niños contra la Laminopatía |
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insamlingsStiftelsen för MuskelDystrofiForskning, SMDF |
Nätverket för spinal muskelatrofi |
Neuromuscular Center |
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Swiss Foundation for Research on Muscle Diseases |
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Hacettepe University |
SMA GRUBU |
SMA Multidisciplinary Clinic, Pediatric Neurology Institute, Tel Aviv Sourasky Medical Center |
SMA HASTALIĞI İLE MÜCADELE DERNEĞİ TURKEY |
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Children with SMA - Foundation |
State Institution"Institute of Neurology, Psychiatry and Narcology of NAMS of Ukraine" |
Ukrainian Neuromuscular Diseases and Peripheral Nervous System Diseases Association |
Ukrainian parent project "MIO-LIFE" |
Heart Mother |
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Action Duchenne |
Alex's Wish |
Duchenne Alliance |
Duchenne Children's Trust |
Duchenne Family Support Group |
DUCHENNE NOW |
Genetic Alliance UK |
Harrison's Fund |
Joining Jack |
Myotonic Dystrophy Support group |
Myotubular Trust |
Spinal Muscular Atrophy Support UK |
Charcot-Marie-Tooth UK |
SMA Europe |
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Ariadne Diagnostics LLC |
BioBlast Pharma Ltd |
Coalition to Cure Calpain 3 |
Cooperative International Neuromuscular Research Group (CINRG) |
CureDuchenne |
Duchenne Alliance |
Fulcrum Therapeutics |
gne-myopathy.org |
Hereditary Neuropathy Foundation |
Hope for Gus Foundation |
Myotonic Dystrophy Foundation |
Phrixus Pharmaceuticals, Inc. |
PhaseBio Pharmaceuticals Inc. |
PTC Therapeutics |
SUNY-Downstate Medical Center |
Tonus Therapeutics |
Two Smiles One Hope Foundation |
University of Minnesota-Paul and Sheila Wellstone Muscular Dystrophy Center |
University of Missouri |
Parent Project Muscular Dystrophy |
Jain Foundation |
Medpace |
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DMD Vietnam club |
19 Mar 2019