Elizabeth Vroom

Chair, World Duchenne Organisation (UPPMD)

Duchenne Parent Project

Position in Extended Committee - Patient Organisation Representative

Elizabeth is the president of Dutch Duchenne Parent Project and the chair of United Parent Projects Muscular Dystrophy (UPPMD). UPPMD is owned and managed by parent project organisations set up by parents of children with Duchenne Muscular Dystrophy in many different countries all over the world. As the chair of UPPMD, Elizabeth can represent the Duchenne parent community on the TACT committee.

Elizabeth is invited to speak at many international conferences about Duchenne. She is also a member of the TREAT-NMD Project Ethics Council and a practicing Orthodontist.

Website www.duchenne.nl